Cohen Cousins

The Cohen Syndrome Research Foundation has brought these kids together. They have advocated for research, education, and support for Danny and all of his Cohen Syndrome Cousins. There are less than 1,000 children and adults worldwide who have this rare syndrome.

Danny’s Story

Danny Caron was born July 6th, 2003. He shares his birthday with his Grandpa Augie. He was born in Carson City, Nevada and was brought home to Hudson, Wisconsin 2 weeks after his birth. Danny was adopted later that year by Matt, Michelle and Jacob Caron.

He was quite ill as an infant and toddler. He was delayed developmentally and obviously had special needs. He was and is today one of the sweetest humans you’ll meet. He touches people’s hearts and souls like no other.

When he was 11 we had switched Danny’s developmental neurologist. We feel it was a divine intervention that led us to discover he has a rare genetic syndrome, Cohen Syndrome.

The Danny Boy Open will be raising money for the Danny Boy Foundation Inc. (DBFI). This 501 C3 non- profit’s mission is to celebrate and support children and adults with disabilities and their caregivers.

Danny and our family have been so fortunate to have such supportive and loving family, friends and community. The saying “It takes a village” pertains to Danny and our family. His life has been so filled with opportunities of adaptive activities and the most loving friends, teachers, personal care workers and even strangers we meet give and receive so much love to and from Danny. He skis, plays hockey, dances, sings, participates in the Special Olympics, and the famous Rhinestone Raider’s Cheer group. We’re so grateful.

We also understand we all receive more than we give in regards to Danny. We would like to say thank you, thank you and thank you to all of you who are in Danny’s life.

All of your donations and participation will be far reaching to children and adults like Danny and together we’ll make a difference in their lives. Let’s make the world a little better place together. Again, thank you so very much.

Loving ya,
Matt, Michelle, Jake and Danny Boy